My darling little boy!!!
You are the most AMAZING little boy!!! You keep hitting road bumps BUT you keep smiling, giving fist bumps, and blowing kisses.
Last week on the 19th you had a endoscopy and colonoscopy with biopsies. The results came back on the 26th and you have inflammation - a LOT of it! Your GI doctor thinks half of it is from food allergies and the other looks like inflammation that they would see from a Crohn's disease patient.
So the 26th you had a HORRIBLE night and the day was spent mostly screaming. The GI doctor put you on a steroid of the inflammation but we were going to be able to get you on it till the 28th in the afternoon (pharmacy issues).
After spending most of the day screaming your GI nurse practitioner recommended put you in at Boys Town Hospital. We got here last night (the 27th) and you were not happy at all!! You spent the night screaming and you have spent today screaming and playing and walking and attempting to get food (but haven't gotten any cause you are not allowed to eat).
You finally fell asleep about an hour ago (4:30 pm).
Don't know yet how long we will be here but I do know that we are in amazing hands and the nurses and doctors here don't look at mommy like she's crazy (which I totally appreciate).
I love you my darling boy!!
Mommy
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